Medical Conditions – Down Syndrome Awareness Month – Day 8.
by When we first received word that the staff at the hospital believed that AJ might have Down syndrome, they suggested doing genetic testing right away. …
Tag: trisomy 21
Brushfield Spots – Down Syndrome Awareness Month – Day 7.
When most people think of the eyes of a person with Down syndrome, they typically think of how they are almond shaped and slanted. But …
Walking Games and Ukulele
AJ has still been working on walking. To be honest, I expected him to have taken off by now. In true AJ fashion though, he …
Cherished Portraits
I almost didn’t share these photos… We didn’t really say much to anyone because we were trying to process what was going on ourselves, but …
Tape Free Life…
This little cutie has almost clear cheeks and is nearly back up to full volume of feeds of skim milk through his fancy gtube as …
Getting A Trach / Trach Placement Day
We can all breathe a lot easier now – one of us quite literally. AJ is out of OR and back in his room. His …
Today has been an incredibly difficult day, and I don’t suspect the days that follow will be any easier. AJ was able to come off …