Loving the Chaos
by Today has been a bit chaotic, but I wouldn’t change it for the world. Averie had theatre camp in the morning, discovery camp in the …
Making up for Hospital Days by Living Outdoors
This kid would live outdoors if he could! All day he’s been demanding to be outdoors, even getting up at his walker and walking to …
15 Year Anniversary at Work
Fifteen years is a long time… I’ve been at this company, by various names, since I was 23. That’s basically all of my adult life. …
Water Play for a Trached Kid
This might be THE single best thing I’ve purchased in a while! The only things AJ consistently asks for are his daddy, his I-pad, his …
Dream Night at Blank Park Zoo
I don’t even know if there are words for how amazing this event is. The zoo is opened for special needs families for the evening …
Stuck Inpatient Because of Insurance
Good news: he’s done being woozy from anesthesia and is back to his normal happy self. Bad news: we are stuck inpatient until Tuesday for …
Sometimes We Don’t Get the News We Want
AJs airway was largely swollen back shut. The scope images below show what it looked like before surgery (left group of photos), what it looked …
The Calm Before the Storm
Pre-OR trip nights are oddly relaxed for us. Granted it helps that he is “only” going in for a scope tomorrow (they may decide to …
Heading Back to CHOP
We are on the road again! This time he’s going in for some follow up appointments with cardiology and his ENT/Surgeon is going to be …