Fevers and Fluid Overload
by The last 24 hours weren’t as nice as the ones before it. Overnight AJ spiked a temp, so we had to send off cultures and …
Author: Amber
Celebrating Pee!
Who thought that life would come down to being excited when your baby pees? Aaron Gale unfortunately went home, but AJ finally decided that he had …
Post Op Update
Just a quick peek at AJ post op last night. He’s being kept as comfy as possible, but more than anything he just wants to …
Rocking through recovery weans…
Today’s been a good day for Mr AJ. The big “issue” we have is that he needs to start peeing more. His diuretics were started …
Glenn Surgery Day & A New Diagnosis – Subglottic Stenosis
AJ went down to the OR around 9 AM this morning. We had a chat with his surgeon, Dr Gaynor, who always puts my mind …
He’s Back from OR!
Prayers have certainly been answered!! He’s back from OR and settling in to his new bed slot. Everything looks good thus far, his bleeding is …
Happy Birthday, Aaron!
Today a very special husband and father celebrates his birthday. This past year has definitely not been easy on any of us, but I tend …
Night Before Surgery
Hardest thing I’ve done to date? Tucking my kiddo in for bed the night before surgery. He had his bath, was full of happy naked …
AJ’s Getting a Glenn?!
This handsome little boy has no idea what he’s getting into, but all of his amazing progress have managed to get him put on to …