What is HLHS (Hypoplastic Left Heart Syndrome)?
by AJ’s official heart diagnosis is Hypoplastic Left Heart Syndrome (HLHS) and Unbalanced AV Canal. We have spent four years learning about AJ’s heart, learning what …
Tag: norwood
Stable – A Heart Mom’s Favorite Word
Today was exhausting. AJ had appointments in Coralville and Iowa City – five of them to be more precise. We arrived at the first stop …
Norwood Surgery Day
AJ was taken in to anesthesia at 10:30 eastern and we met with our surgeon. He walked us through the Norwood procedure, talked through the …
Out of Surgery!!!
Guess who is out of surgery?! I’m so overjoyed at this point that I’m at a loss for words. He looks so much better – …
The night before surgery
In less than 12 hours, Aaron and I will be pacing in the family room here at CHOP. AJ is scheduled to be taken back for anesthesia/surgery …
Surgery is Scheduled
Last night Aaron stayed at the hospital while I crashed in the hotel. I slept soundly, and apparently so did AJ, he had an uneventful evening. They …