“People with Down syndrome are always happy.” – Down Syndrome Awareness Month – Day 1.
by Today marks the beginning of Down syndrome awareness month. Today also marks the beginning of seeing me post bits of information about Down syndrome on …
Encouraging Walking
AJ can get around very proficiently in his walker, as evidenced by the CR Heart Walk and HADSA walk this year. Convincing him to walk …
World Heart Day
Today is world heart day. Before AJ was born, I honestly did not realize how many babies were born with heart defects. I knew it …
What is HLHS (Hypoplastic Left Heart Syndrome)?
AJ’s official heart diagnosis is Hypoplastic Left Heart Syndrome (HLHS) and Unbalanced AV Canal. We have spent four years learning about AJ’s heart, learning what …
Stable – A Heart Mom’s Favorite Word
Today was exhausting. AJ had appointments in Coralville and Iowa City – five of them to be more precise. We arrived at the first stop …
Quick DIY T-Shirt
When you have a group walk coming up, and you suddenly realize that you need a themed shirt, sometimes you have to get creative. This …
HADSA Step Up For Down Syndrome Walk 2019
Today was the HADSA Step Up for Down Syndrome Walk. HADSA (Hawkeye Area Down Syndrome Association) is one of the organizations that has been incredibly …
Walking Games and Ukulele
AJ has still been working on walking. To be honest, I expected him to have taken off by now. In true AJ fashion though, he …
Medical Parenting Paperwork – Ugh!
Remember when you learned how to read itemized hospital billing statements in school? Wait, what? Pretty sure none of us did that… or at least, …