In a revolving door at CHOP
by Well. I just realized I never finished this post from last hospital stay. So while we sit waiting for him to come out of the …
Discharged from the Hospital and Healing!
I completely spaced announcing that AJ was discharged on Saturday! And I’m saying it now, while acknowledging that he is going back in tomorrow. He …
LTR Surgery – Stent Removal
He’s a little naked here, but…. I busted him in the act of trying to order food from ubereats when he’s supposed to be NPO …
Plans for Stent Removal Pushed Forward
This handsome, happy boy who is nearly back to his normal self has earned himself a trip back to the OR tomorrow. They’ll be going …
LTR Surgery, Next Steps
As I arrived at the hospital today, Aaron and AJ were just getting back from a walk around the unit. he wasn’t exactly happy that his walk …
LTR Surgery, Post Op Next Day
AJ had a busy day today – we took out his urine catheter, removed his arterial line, removed his PIV, came off of the ventilator, …
LTR Surgery – Post Op!!
True to his normal nature, AJ was “difficult” in the OR. (Nearly 9 hours in there!!) But thankfully this time the issues were anatomical and …
LTR Surgery Day
Consents are signed and he’s off to the OR. First update is expected in about 1.5 hours – placing a picc and art line and …
Pre LTR, Triple Scope
This morning was AJ’s scope that’s needed to determine if he will be eligible for a reconstruction surgery. ENT and Pulmonology said he looked great. …