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  • Special Needs Parenting
    • All Special Needs Parenting Posts
    • Down Syndrome
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    • Cookie Decorating
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Category: CHDs (Congenital Heart Defects)

CHDs and an Increased Risk of Other Health Concerns
CHDs (Congenital Heart Defects)

CHDs and an Increased Risk of Other Health Concerns

Amberby AmberFebruary 13, 2020February 13, 2020

Nearly 60% of children with a CHD have special healthcare needs in addition to their heart concerns, compared to 20% of children without. Source CDC …

CHDs and an Increased Risk of Other Health Concerns Read More
It’s Normal to Need Help
CHDs (Congenital Heart Defects)

It’s Normal to Need Help

Amberby AmberFebruary 12, 2020February 12, 2020

There is no award that you’ll get for being able to say “I’m a parent of a child with a CHD and I never wanted or needed any help”

It’s Normal to Need Help Read More
Causes of CHDs
CHDs (Congenital Heart Defects)

Causes of CHDs

Amberby AmberFebruary 11, 2020February 12, 2020

Certain genetic conditions increase the risk of having a congenital heart defect. So far Down syndrome and other types of trisomies, Turner syndrome, and 22q11.2 …

Causes of CHDs Read More
Adults with CHDs
CHDs (Congenital Heart Defects)

Adults with CHDs

Amberby AmberFebruary 10, 2020February 10, 2020

A lot of people ask us what the life expectancy is for AJ. It’s a weird question to be asked, and the truth is that …

Adults with CHDs Read More
When Are CHDs Found?
CHDs (Congenital Heart Defects)

When Are CHDs Found?

Amberby AmberFebruary 9, 2020February 9, 2020

We did not know anything was even potentially wrong with AJ until after he was born. In fact, we all took turns holding him after …

When Are CHDs Found? Read More
Critical CHDs and Infant Heart Surgery
CHDs (Congenital Heart Defects)

Critical CHDs and Infant Heart Surgery

Amberby AmberFebruary 7, 2020February 8, 2020

The nights before and the mornings of my son’s open-heart surgeries are deeply engrained in my mind. I spent every second I could with him, …

Critical CHDs and Infant Heart Surgery Read More
What is a CHD, and How Common are They?
CHDs (Congenital Heart Defects)

What is a CHD, and How Common are They?

Amberby AmberFebruary 7, 2020February 7, 2020

I’m not ashamed to admit that before our son, I had no idea what CHD stood for, much less how much it would change our …

What is a CHD, and How Common are They? Read More

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