Big Sister Time
by Averie got her big sister cuddles in with her brother yesterday who napped in her arms. Then we headed off to celebrate Kelly and Scooter’s wedding. We were …
Author: Amber
“Home” at UIHC Again!
We made it back! We absolutely will miss CHOP and the wonderful team out there, but we are definitely happy to be back “home” at …
Plans for Returning “Home”
Well. It’s been a bit since I’ve written an update, so I’m going to keep this one short and sweet. As long as everything goes …
If you’re happy and you know it shake your toys!!
People always say to treasure every moment, because they grow up so fast… But when it comes to this little guy, each moment is so …
AJ is having a pretty good day today. They are slowly making sense of his diuretics and now are working to wean his oxygen and …
Culture Negative Sepsis?
We are officially one week post surgery. The extra tubes are gone, except the art line which will likely go tomorrow, and his incision is …
Working Harder to Breathe
So this first video is just to show what I mean when I say he’s working harder to breathe. He puts his whole body into …
Wires, Tubes, and Lines are on their way out soon!
By this time tomorrow, hopefully AJ will no longer have all of the extra tubes and lines that he acquired post surgery. As it stands, …
Up to Full Feeds
AJ seems to be having a better day again today, though he is still struggling with his temp being high (39C, 102F). His nurse today …