Ditched the Training Wheels!
by This just happened – Averie’s friend came inside and asked Aaron and I both to come outside – quick! Which had us both in a …
Author: Amber
Still Working Toward Home
Someone’s had a busy afternoon! We are STILL off the vent full time. To the point that they took it out of our room!!! Last …
Getting Big Sister’s Room Ready!
With AJ coming home soon the focus has largely been on getting the house ready for him. Clearing out space to make room for his …
OFF THE VENT!
This little man has something to be incredibly proud of today. Yesterday morning the docs made the call to go ahead and shoot for a …
Sitting in a Bumbo like a Big Boy!
AJ got to finally *really* sit in a bumbo seat yesterday. He sat in one before but still was a little too wobbly to really …
First Stroller Ride
Today AJ got to go on his first stroller ride. Big sister got to drive while mom carted the oxygen tank and Nana provided moral …
Moving to “the Floor”!
Today is a big day for AJ. His whole life has been spent in ICUs – PICU at U of I and CICU at CHOP. …
Sibling Super Heroes
Things that make my heart happy? Seeing these two spend time together. Averie got to spend time today at the hospital hanging out with the …
When You Leave Dad in Charge for the Holiday…
And you send him a message saying “uhh… he’s gotta dress festive!”