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Amazing Online Friends and Phonics

I haven’t posted an update in a while. Not because we don’t have anything to share. But more because life has been crazy!

AJ is making strides in his physical strength. He’s mastering riding his horse and has lately preferred that to any other method of transportation.

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However… this week something amazing happened. I’m in a tight knit group of amazing girls I’ve met online. We do a secret sister gift exchange. She sent me some amazingly fun things for me, but she also sent AJ this metal guardian walker. So he will now have this to learn with at home. It’s going to take some time but I truly believe it will open up a lot of opportunities for him — even just in terms of learning balance and strength. I feel like I keep using the word amazing, but that’s precisely what it is. And to say we are thankful would be a serious understatement!

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Academically he shocked us all the other day. I asked him to hand me the letter of the fridge that made the short A sound and he could find it. And he kept doing it for L, R and M etc. so now we are moving on to putting letters together to make words!

On the eating front he’s still making slow progress. He is still interested and tries, and is finally starting to eat some dissolvable snacks.

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We do have some developing info on the horizon for his next trip out to Philadelphia for his airway reconstruction that hopefully I’ll be updating on soon. For now we could use all the prayers and happy thoughts you can manage.

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