First Time Wearing A PMV
by Today, AJ was able to test out a Passy Muir Valve for the first time. I’m not usually someone who cries – but this afternoon, …
Tag: LTR Surgery
Fast Scope – Next Up, PMV Trials!
These trips to the OR are getting faster and faster. We have a running joke that Dr. Jacobs can do a scope faster than the …
Stuck Inpatient Because of Insurance
Good news: he’s done being woozy from anesthesia and is back to his normal happy self. Bad news: we are stuck inpatient until Tuesday for …
Sometimes We Don’t Get the News We Want
AJs airway was largely swollen back shut. The scope images below show what it looked like before surgery (left group of photos), what it looked …
The Calm Before the Storm
Pre-OR trip nights are oddly relaxed for us. Granted it helps that he is “only” going in for a scope tomorrow (they may decide to …
Heading Back to CHOP
We are on the road again! This time he’s going in for some follow up appointments with cardiology and his ENT/Surgeon is going to be …
Returned Home. Again!
Well….. we are home! (Okay, so this picture was in Fairfax during Averie’s softball game tonight, but close enough!) His scope on Tuesday went okay …
Getting closer to leaving
Yesterday they snapped a picture of AJ in the OR to use for nurses week. He’s still happy when being wheeled off to the OR, …
FINALLY Heading Home!
Guess who is heading back to Iowa soon??? He had a bronch this morning and although he will need more work in the future – …