What is HLHS (Hypoplastic Left Heart Syndrome)?
by AJ’s official heart diagnosis is Hypoplastic Left Heart Syndrome (HLHS) and Unbalanced AV Canal. We have spent four years learning about AJ’s heart, learning what …
Tag: glenn
“Home” at UIHC Again!
We made it back! We absolutely will miss CHOP and the wonderful team out there, but we are definitely happy to be back “home” at …
Culture Negative Sepsis?
We are officially one week post surgery. The extra tubes are gone, except the art line which will likely go tomorrow, and his incision is …
Wires, Tubes, and Lines are on their way out soon!
By this time tomorrow, hopefully AJ will no longer have all of the extra tubes and lines that he acquired post surgery. As it stands, …
Up to Full Feeds
AJ seems to be having a better day again today, though he is still struggling with his temp being high (39C, 102F). His nurse today …
Fevers and Fluid Overload
The last 24 hours weren’t as nice as the ones before it. Overnight AJ spiked a temp, so we had to send off cultures and …
Post Op Update
Just a quick peek at AJ post op last night. He’s being kept as comfy as possible, but more than anything he just wants to …
Rocking through recovery weans…
Today’s been a good day for Mr AJ. The big “issue” we have is that he needs to start peeing more. His diuretics were started …
Glenn Surgery Day & A New Diagnosis – Subglottic Stenosis
AJ went down to the OR around 9 AM this morning. We had a chat with his surgeon, Dr Gaynor, who always puts my mind …