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How we Secure A Pulse Oximeter Sensor/Probe for Better Readings
Medical Parenting

How we Secure A Pulse Oximeter Sensor/Probe for Better Readings

Amberby AmberNovember 12, 2019November 14, 20192

Here are some of the techniques that have helped us to not only curb (most) of the false alarm beeps, but also to make the sensors last longer. We typically replace a sensor once every 2-3 weeks compared to 2-3 times per week when we first came home.

How we Secure A Pulse Oximeter Sensor/Probe for Better Readings Read More
Snow Indoors
Anderson James / Averie Rose

Snow Indoors

Amberby AmberNovember 12, 2019November 12, 2019

In the midst of a way-too-early-in-the-year snow day, bringing the snow indoors was shockingly just what I needed to remember that snow isn’t actually the root of all evil – even if the general consensus on social media seems to say so!

Snow Indoors Read More
AJ Update: Weight again
Anderson James / Blended Diet

AJ Update: Weight again

Amberby AmberNovember 10, 2019

Thursday AJ went to another round of doctor appointments. (Before he got sick). His appointments were overwhelmingly positive. Everyone continues to comment on how he …

AJ Update: Weight again Read More
Regrets/Guilt and Medical Parenting
Anderson James / Special Needs Parenting

Regrets/Guilt and Medical Parenting

Amberby AmberNovember 6, 2019November 7, 2019

Being a parent is hard. Being a medical parent is harder. You can try to fight me on this, but odds are I’ll just tell you I’m too tired to fight.

Regrets/Guilt and Medical Parenting Read More
A Diagnosis of Down Syndrome is not a Death Sentence. – Down Syndrome Awareness Month – Day 31
Down Syndrome

A Diagnosis of Down Syndrome is not a Death Sentence. – Down Syndrome Awareness Month – Day 31

Amberby AmberOctober 31, 2019November 1, 2019

For the last day of Down syndrome awareness month, I’m going to take us all the way back to the beginning. Our diagnosis story wasn’t …

A Diagnosis of Down Syndrome is not a Death Sentence. – Down Syndrome Awareness Month – Day 31 Read More
Siblings – Down Syndrome Awareness Month – Day 30.
Down Syndrome

Siblings – Down Syndrome Awareness Month – Day 30.

Amberby AmberOctober 30, 2019November 1, 2019

Last night Averie went live with me to do an interview on this topic. We didn’t rehearse it, though I did give her some idea …

Siblings – Down Syndrome Awareness Month – Day 30. Read More
Inclusive Education – Down Syndrome Awareness Month – Day 29.
Down Syndrome

Inclusive Education – Down Syndrome Awareness Month – Day 29.

Amberby AmberOctober 29, 2019November 1, 2019

There is certainly something to be said about the importance of seeing something being done for many of us when learning. AJ is definitely a …

Inclusive Education – Down Syndrome Awareness Month – Day 29. Read More
How Common Is It? – Down Syndrome Awareness Month – Day 28
Down Syndrome

How Common Is It? – Down Syndrome Awareness Month – Day 28

Amberby AmberOctober 28, 2019November 1, 2019

I had no idea how massive the Down syndrome community was until a few months after AJ was born. Community, by the way, is absolutely …

How Common Is It? – Down Syndrome Awareness Month – Day 28 Read More
Clothing – Down Syndrome Awareness Month – Day 27.
Down Syndrome

Clothing – Down Syndrome Awareness Month – Day 27.

Amberby AmberOctober 27, 2019November 1, 2019

There are lines of clothing that have been developed by and/or for individuals with Down syndrome. We have struggled in a few areas with AJ …

Clothing – Down Syndrome Awareness Month – Day 27. Read More

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