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Happy Thanksgiving 2016
Today, I have a lot to be thankful for. But for now, I’m leaving it short and simple. I’m thankful for these two. Who love …
New Tricks for AJ
I haven’t posted videos of AJs progress lately. He’s been working on a lot of skills, many of them social. Here’s a few of his …
Pulmonary Hypertension Awareness
This is a long video, but it does feature AJ, and a couple of my friends kiddos that we’ve met on this crazy journey. (3:33 …
Therapy Updates – Feeding and More
This might not seem like a big deal to the average person. Just another baby eating spoonfuls of sweet potatoes. Ok, I guess I’ll grant …
One Year Trach-iversary
A year ago today AJ had his trach and gtube placed. I remember the thoughts that went through my head that day about whether or …
Delayed Birthday Smash Cake
So at AJs birthday party, he never got to have his cake that Annie from shortCAKES Bakehouse made for him. He was having a good day today, …
We managed to stay home last weekend!! The past two weekends we ended up inpatient. But we kept ourselves out of trouble this time. Barely. …
Wizard of Oz Halloween
It certainly wasn’t a picture perfect Halloween, but it was as good as we get around here! I’m still recovering post op. Struggling with pain …